Posts Tagged ‘Hagen Park’

Today is World AIDS Day.

The 3rd annual Candlelight Vigil will be held tonight at Hagen Park (2020 Wilton Drive in Wilton Manors) starting at 7:00 PM and ending at Georgie ALibi’s Parking Lot around 9:00 PM. I urge you to attend this. I will still hold group (I believe it is my duty) but I will meet you over at the parking lot after group.

Observed December 1 each year. Dedicated to raising awareness of the AIDS pandemic caused by the spread of HIV infection.

World AIDS Day was first conceived in August 1987 by James W. Bunn and Thomas Netter, two public information officers for the Global Program on AIDS at the World Health Organization in Geneva, Switzerland. Dr. Jonathan Mann, Director of the Global Programme on AIDS (now known as UNAIDS). Dr. Mann liked the concept, approved it, and agreed with the recommendation that the first observance of World AIDS Day should be 1 December, 1988.

The date of December 1 was selected because it was believed it was a dead spot in the news calendar, far enough removed from the November elections and soon enough before the Christmas holidays, thus a perfect period to get news media coverage and raise awareness.

Each Year, a different theme is chosen:

1988 Communication
1989 Youth
1990 Women and AIDS
1991 Sharing the Challenge
1992 Community Commitment
1993 Act
1994 AIDS and the Family
1995 Shared Rights, Shared Responsibilities
1996 One World. One Hope
1997 Children Living in a World with AIDS
1998 Force for Change: World AIDS Campaign With Young People
1999 Listen, Learn, Live: World AIDS Campaign with Children & Young People
2000 AIDS: Men Make a Difference
2001 I care. Do you?
2002 Stigma and Discrimination
2003 Stigma and Discrimination
2004 Women, Girls, HIV and AIDS
2005 Stop AIDS. Keep the Promise
2006 Stop AIDS. Keep the Promise – Accountability
2007 Stop AIDS. Keep the Promise – Leadership
2008 Stop AIDS. Keep the Promise – Lead – Empower – Deliver
2009 Universal Access and Human Rights
2010 Universal Access and Human Rights

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Update from Tim – SFAN meeting;

I really want to thank those you who came to the SFAN meeting and hope we will have better information soon. I apologize if any one was uncomfortable introducing themself. That is regular for SFAN meetings, but we usually do not do that at Community Meetings. Please be assured that although the meeting is recorded, it is just for very basic minutes and your name will not be posted anywhere. We are in such need for Congress to approve additional funding, but we have to keep asking for it and demanding it.
For those that came, I’m sorry you had to listen to me again about Medicare part D and ADAP. I had not planned to do a presentation but as the day went on yesterday, there seemed to be very little about it so I put a Powerpoint together for a handout just in case. I hope the information I gave was informative, despite being repetitive of what has already been posted. I have had the most frustrating week dealing with Tallahassee trying to get them to see how important it is for ADAP to cover Medicare Part D clients in the Catastrophic Phase.
Due to the huge budget shortfall, I was repeatedly told it was either give them just help in the Doughnut Hole or no help at all. I will continue to fight for extra money from Washington and work with community organizations on ways we can keep patients from falling out of care due to unaffordable costs.
I find it very suprising that the Health Department says only 21 clients in Broward are Medicare + ADAP. That number seems very low to me since we had 8 at the meeting last night.
For those with ADAP, the change in eligiblity from 400% Poverty ($43,320) to 300% ($32,490) will not be the dreaded December 1,2011that was originally announced, but no earlier than February 1, 2011. This gives those affected clients time to enroll in Patient Assistance Programs. This number is 71 in Broward County. At least the Patient Assistance Programs for HIV medications are covering everyone. We are only aware of 1 person who was initally denied, but then received their medication on appeal. It’s important to know you have the right to appeal and for the HIV meds you should not have trouble obtaining them. Unfortunately, supportive medication Patient Assistance Programs are less generous and links those removed from ADAP are under the Meds Assistance tab from the Home Page. As a reminder, the Health Department Patient Assistance Progam Navigator who can help you with both original applications and appeals is William Patrick and his direct number is (954) 467-4700 extension 5666.
I hope there will be good turnout tonight at the Town Hall meeting at Hagen Park as their will be media there to cover it and represenation from government officials. Please hang in there, don’t give up, and try to become an Activist even if you are not directly impacted. Activism from large numbers is the only possibility of us getting the needed additional funding. Thanks again. Tim

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