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Wednesday November 28, 2012 we will have a guest speaker.  Jason King from AIDS Healthcare Foundation will speak on AHF’s advocacy programs.

AHF is engaged in an effort to curb HIV drug pricing in this country, and our main target right now is Gilead Sciences. As you know, Gilead assigned its newest antiretroviral therapy, Stribild, a wholesale acquisition cost (WAC) of $28,500 per year. This is absolutely unconscionable. Despite calls from AIDS organizations, members of the community, and 13 members of Congress for Gilead to practice restraint when pricing its new drug, Gilead proceeded to price Stribild at a value that exceeds most HIV patients’ annual income. Stribild is a “me too” drug, similar to Atripla and Complera, whose therapeutic benefits are not clinically superior to Atripla—an efficacious single-tablet regimen that costs less. There has even been indication in some studies that the drug may be more harmful to the kidneys and liver than drugs in other regimens. Stribild’s price is going to have a deleterious impact on federal-state AIDS Drug Assistance Programs, Medicaid and Medicare—not to mention private insurers. It is anticipated that Stribild will become a new first-line therapy, prescribed to many. Increased utilization of this drug will further burden already unsustainable and insolvent systems. This will hamper patient access to the drug and cause wait lists to rise.

 AHF is banding together with fellow advocacy organizations and unaffiliated activists to bring on the pressure. Our goal is to get Gilead to lower Stribild’s price and extend rebates and cost savings to all payers. We have had much success in the past through collaboration with groups like yours in getting big PHARMA to bend to the will of the community. I have provided some supplemental material attached to this email about Stribild (formerly the “Quad”) for your review. I believe companies like Gilead will only change when facing the might of AIDS community solidarity.

 AHF will provide refreshments.

Steve

 

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About 20 HIV/AIDS advocates rallied Tuesday morning in Hershey protesting a contentious decision by the Milton Hershey School to deny admission to an HIV-positive studentlast year.

aids_0124_jcw.jpg
John C. WhiteheadHIV/AIDS activists rally on Hersheypark Drive Tuesday morning. The group, organized by the AIDS Healthcare Foundation, was protesting a decision by the Milton Hershey School to reject the admission of an HIV-positive student.

The student, who has not been identified, has since filed a federal lawsuit against the school, seeking admission and damages.
Protesters were led by the AIDS Healthcare Foundation, a Los Angeles-based advocacy group.

To read full story CLICK HERE

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NEW ROOM: We’ve moved to room 204

Jason King, Pharmacy Specialist/Patient Advocate from AHF (AIDS Healthcare Foundation) will be our guest speaker tomorrow. He will discuss: the work that AHF does around the world. The connection between the revenues generated at the pharmacy and their global advocacy and care. He’ll discuss many free services available to patients; access to a readily available patient advocate; being a dispensary of medication covered under the Ryan White formulary; the not-for-profit nature to the AHF organization. In terms of advocacy and care, he will briefly go over the changes to the patient care services in the state and Broward County and AHF’s involvement; free HIV testing model, Men’s Wellness and NorthPoint Healthcare Center; AHF’s mission to never turn anybody away.

Stork’s will be catering tomorrow’s meeting.

So come eat and enjoy the presentation and bring your questions.

Steve

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Jason King from AHF (AIDS Healthcare Foundation) will be our guest speaker tomorrow. He will discuss: the work that AHF does around the world. It’s important to show the connection between the revenues generated at the pharmacy and our global advocacy and care. As far as pharmacy goes, I’ll discuss our many free services available to our patients; access to a readily available patient advocate; being a dispensary of medication covered under the Ryan White formulary; the not-for-profit nature to our organization. In terms of advocacy and care, we will briefly go over the changes to the patient care services in the state and Broward County and AHF’s involvement; free HIV testing model, Men’s Wellness and NorthPoint Healthcare Center; AHF’s mission to never turn anybody away.

Stork’s will be catering tomorrow’s meeting.

So come eat and enjoy the presentation and bring your questions.

Steve

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This Wednesday 06-15-2011 we’re having a guest speaker. Jason King from AIDS Healthcare Farmacy Foundation (AHF) is coming to the group to speak about AHF. He’s also bringing FOOD. So if you want to find out about AHF, and/or want to ask questions and/or just want to eat, come joins us.

Steve

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The PrEP study using Truvada

Mark King in his blog My Fabulous Disease summarizes this important debate raging among AIDS advocates right now – does PrEP (pre-exposure prophylaxis) help or hurt prevention efforts? PrEP, in layman’s terms, is the strategy of giving a pill regimen to people at risk of contracting HIV – the regimen appears partially effective, in early studies, in keeping them from becoming HIV infected. The AIDS Healthcare Foundation, for one, has gone on record saying “there is no magic pill,” because they fear PrEP will lead to riskier behavior. But other HIV advocates, like many involved in IRMA (International Rectal Microbicide Advocates) believe PrEP is worthy of further investigation. Yes this sounds wonky, but trust me, it has everything to do with the future of HIV prevention and it’s worth your browsing these links and forming your own opinion.

Response from ACT NOW – Choice in HIV Prevention

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House passes ‘Hastings Amendment’ in a voice vote early Friday morning; following meetings with AHF doctor & staff, Alcee Hastings (D, FL 23rd), introduced and shepherded budget amendment reallocating $42 million in government bureaucracy to relieve the struggling AIDS Drug Assistance Programs (ADAP)

Florida, with nation’s third highest AIDS rate, has 3,276 people on an ADAP waiting list as of Feb 17th; AHF commends Rep. Hastings for his leadership funding lifesaving AIDS drug program

By: AIDS Healthcare Foundation
Washington, DC – February 18, 2011
AIDS Healthcare Foundation (AHF) today commended United States Congressman Alcee Hastings (D, FL, 23rd District) for authoring, introducing and successfully shepherding a budget amendment to the current year’s budget that secures crucial additional funding to address a growing crisis in the nation’s AIDS Drug Assistance Programs (ADAP), a network of federal and state funded programs that provide life-saving HIV treatments to low income, uninsured, and underinsured individuals living with HIV/AIDS nationwide. The House of Representatives passed the Hastings Amendment in a voice vote recorded at 12:38 a.m. Friday morning.

“Congressman Hastings has succeeded in getting government funding—$42 million—reallocated to address a growing AIDS funding shortfall that is crippling ADAP and threatening the lives of thousands of Americans,” said Michael Weinstein, President of AIDS Healthcare Foundation. “His swift and decisive action on this issue shows real leadership, and as a result, people with AIDS in Florida and across the nation have the potential to get off waiting lists and on to lifesaving antiretroviral treatment. We thank Representative Hastings for vigorously supporting—and funding—ADAP, and we now call on the Senate to follow suit and make this funding happen.”

As of February 17th, there were 6,452 individuals on ADAP waiting lists in 10 states, including 3,276 people—more than half the nationwide total—in Hastings’ home state of Florida. Since December alone, patient waiting lists for the nation’s hard-hit AIDS Drug Assistance Program have grown 36% for individuals waiting to access antiretroviral treatment through ADAP than there were just two months ago.

Last week, officials and physicians from AIDS Healthcare Foundation’s Southern Bureau, which serves more than 15,000 Floridians living with HIV/AIDS through a variety of programs, including free HIV testing and prevention programs, HIV/AIDS health care centers and AHF pharmacies located throughout the state, a statewide disease management program and its Positive Healthcare Managed Care program, traveled to Washington to lobby for the use of financial offsets from HHS bureaucracy to address the ADAP crisis. Michael Kahane, AHF’s Southern Bureau Chief and Dr. Rebecca Colon, Medical Director of AHF’s NorthPoint clinic in Ft. Lauderdale, Florida met primarily with the Florida House delegation, clearly laying out the impact ADAP funding shortages are having on people with HIV/AIDS in Florida, as well as those vulnerable to infection.

During the lobbying visits, AHF’s delegation met with Rep. Alcee Hastings’ office. Congressman Hastings subsequently offered an amendment to the House budget that moves $42 million from the bureaucracies of Health Resources and Services Administration (HRSA), the Centers for Disease Control (CDC), and the National Institutes of Health (NIH), and redirects it through Health and Human Services (HHS) specifically to ADAP, for use from now until the end of September, 2011. This reallocation of existing government funds results in more money for AIDS and no increase in overall federal spending.

“What’s truly remarkable about the passage of the Hasting Amendment is that at time when the Republican controlled House is cutting over $100 billion from the budget, they unanimously agreed to fund AIDS care and treatment,” added AHF’s Weinstein.

Still ahead: the Senate must now agree to the budget amendment in order for it to pass and take effect.

In an official statement posted on his blog (via his website) earlier today, Representative Hastings wrote:

“Last night, I offered an amendment to H.R. 1, the Full-Year Continuing Appropriations Act, which would help people living with HIV/AIDS who cannot afford their treatment by reallocating additional funding to our nation’s AIDS Drug Assistance Program (ADAP). I am pleased to report that my amendment was agreed to by a voice vote and thus included in H.R. 1.

It is unconscionable that, in 2011, we often have the resources to save lives but wait until a crisis before taking action. Just this month, thousands of Floridians living with HIV/AIDS were on the verge of losing access to their life-saving drugs as Florida’s ADAP ran out of money.

My amendment reallocates $14 million from each of the Fiscal Year (FY) 2011 administrative budgets of the Centers for Disease Control and Prevention (CDC), Health Resources and Services Administration (HRSA), and National Institutes of Health (NIH) in order to provide $42 million to ADAP. According to the Congressional Budget Office, if enacted, my amendment would save $1 million in new FY 2011 expenditures. Furthermore, it would have no net budget authority effect for FY 2011.

We can and must do better. I urge my colleagues to support increased funding for our nation’s ADAP by voting in favor of my amendment. By reallocating desperately-needed funds to ADAP, we are helping states like Florida ensure that low-income individuals living with HIV/AIDS have access to the medications and services they need to stay alive while stemming the tide of new infections and saving our nation money in the long-term.”

During the debate on the amendment last evening, Rep. Debbie Wasserman Schultz (D, FL 20th District) also spoke on the issue. In her remarks, Wasserman Shultz said:

“This essential national program is undeniably in the midst of a devastating funding crisis. The combination of an economic recession, state budget cuts and increased testing and diagnosis of HIV have a created the perfect storm against ADAP’s fiscal situation. More patients are requiring ADAP treatment as the program has been emptied out.

This has resulted in drastic cuts to services provided and thousands in 10 different states have ended up on waiting lists to receive these necessary lifesaving drugs. In my own state of Florida, with the largest of all such waiting lists, 3,276 individuals languish without access to affordable lifesaving treatment. Our state has lowered financial eligibility down to 300% of the Federal Poverty Level while at the same time reducing the formulary for the patients who still qualify.

In this budgetary climate, we must make smart and sensible decisions where we can afford to make an administrative haircut if the tradeoff is saving lives. It is our moral imperative to do so.”

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