Posts Tagged ‘ADAP waiting list’

December 2010 ADAP Waiting Lists

4,543 individuals in 9 states*, as of December 9, 2010

*changes from December 2, 2010 noted in parenthesis (+174))

Arkansas: 5 individuals (+5)

Florida: 2,396 individuals (+85)

Georgia: 837 individuals (+9)

Louisiana: 511 individuals** (+34)

Montana: 14 individuals (0)

North Carolina: 84 individuals (+6)

Ohio: 374 individuals (+11)

Rhode Island: 0 individuals (-16)

South Carolina: 298 individuals (+29)

Virginia: 24 individuals (+9)

While Rhode Island cleared their waiting list of 16 people this last week, Arkansas started up a waiting list with their first 5 people. Sadly Florida continues to average adding approx 75 or more people a week to their list – which now holds 52.7% of all people on the waiting lists throughout the entire nation.
ADAP Dec 10th Watch List

**Louisiana has a capped enrollment on their program. This number is a representation of their current unmet need.



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Good News for ADAP – Medicare Part D.

While Broward County Health Department awaits guidance from the state, ADAP clients with Medicare Part D can continue to get their antiretroviral meds and Opportunistic Infection meds from ADAP. This is great news for now! If you are told otherwise, please ask them to talk to William Patrick or Paul Moore in the HIV/AIDS Program Office. This does not mean that we do not still need Activism at both the State and Federal level because the lack of funding is still critical.


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AIDS Healthcare Foundation is looking for at least 30 Florida ADAP patients who have been put on The Wait List or who would be dropped on February 1, 2011 by the income eligibility being lowered from 400% to 300% Federal Poverty Level. AHF plans to march on Washington in mid January (Date TBA) and will pay for impacted patients to attend. They will be covering all expenses. It would be great if we have impacted patients in our group or through the PALS Project who would be willing to go to D.C., participate in this march and personally lobby Congress. This is a great Advocacy opportunity. If interested, they should contact Jason King at AHF. His email is Jason.King@aidshealth.org. Please share this information with friends if you know they are negatively impacted currently or will be impacted on February 1, 2011.

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Media Contacts: Carl Schmid, (202) 669-8267 CSchmid@theaidsinstitute.org

US House of Representatives Increases AIDS Drug Funding by $60 Million

The AIDS Institute Calls on US Senate to Match House Support

Washington, DC – In a significant victory for people living with HIV/AIDS in the United States, the U.S. House of Representatives has approved an additional $60 million for the financially struggling AIDS Drug Assistance Program (ADAP) in fiscal year 2011. The increased funding was included in the bill that funds all federal programs for next year basically at existing levels, except in some minor instances. “We are pleased that the House recognized the severe need for additional emergency resources to the ADAP program and chose not to keep ADAP funding level next year, which would have been catastrophic”, commented The AIDS Institute’s Deputy Executive Director Carl Schmid.

“Due to the high number of people who have lost their jobs and health insurance during the recent economic downturn, the number of people living with HIV/AIDS who must rely on the AIDS Drug Assistance Program (ADAP) has skyrocketed. At the same time, federal funding has not kept up with growing demand, and state budget cuts have resulted in funding reductions”, said Rep. Debbie Wasserman Schultz of Florida. “Given these constraints, I was pleased to see that the House version of the FY 2011 Continuing Resolution included an influx of $60 million for this critical program. It is my hope that the Senate follows suit, so that Americans living with HIV/AIDS, languishing on waiting lists, can get the treatment they so desperately need as quickly as possible”.

ADAPs provide HIV-related medications to under insured and uninsured individuals living with HIV/AIDS in the United States or about one-quarter of the people with HIV/AIDS estimated to be receiving care in the U.S. ADAP is part of the Ryan White HIV/AIDS program.

As of December 2, 2010, there were 4,369 individuals in 9 states on ADAP waiting lists. In Florida alone, there are 2,311 individuals, or over half of all people on waiting lists. Several states are reducing their eligibility for their ADAP and in the process, actually disenrolling people from the program who are currently taking lifesaving medications. Florida has proposed to disenroll over 337 people from its ADAP early next year. As part of treating HIV/AIDS, daily adherence to medications is critical and interruptions can result in severe health outcomes and resistance to medications.

“While this additional money will help states such as Florida with severe ADAP funding problems it is far from enough to keep up with the demand for ADAP medications,” stated Michael Ruppal, Executive Director of The AIDS Institute. “What is worse is that other parts of the Ryan White HIV/AIDS Program, the parts that provide health care and support services to people with HIV/AIDS, will not receive any increases in funding next year.

The AIDS Institute now calls on the U.S. Senate in the remaining days of the lame-duck session to increase ADAP funding by at least $60 million in its must pass FY11 spending bill, and forward it to the President for his immediate signature.

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On behalf of the Aids Healthcare Foundation, I would like to thank you all for attending Wednesday’s Town Hall ADAP event. It was both educational and a platform for mobilization of the South FL HIV/AIDS Community. The following morning, I attended a meeting in Jacksonville where a business representative from a large pharmaceutical company talked about the ADAP advocacy efforts in South Florida. He specifically referenced Joey Wynn’s presentation at our Town Hall, which means our voices are being heard.

I believe everyone in attendance at the Town Hall has been affected by the HIV virus in some way, and now we all face an impending crisis due to the shortage of funding for ADAP. The funding needed to save the ADAP program and the lives connected to it would be less than the daily cost of many frivolous government expenditures.

Please join our mobilization effort by attending the rally on Tuesday, November 30th @ 5pm. This will take place at the Federal Building in Downtown Ft. Lauderdale at the intersection of Broward and 3rd. This event should be televised and we will make our voices heard. We will send additional emails when plans for other town halls around the state are finalized.

Once again I would like to thank Broward House, Gilead, Red Hispana, Starbucks, Georgies Alibi, Pals Project at Pride Center, and YOU for offering community support. I wish you all a Safe and Happy Thanksgiving and look forward to seeing you on Tuesday, November 30th.

All the best,

Ronald Weston
Regional Sales Director
Office: 800.832.0778
Fax: 727.259.2001
Cell: 727.612.6144

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Operation: Mobilize Sunshine

Help Save Florida AIDS Patients and Save ADAP!

Please Join Us for:

‘Operation: Mobilize Sunshine!’

Nov 17th Wilton Manors Town Hall Meeting Seeks to Mobilize Community on Crisis in Florida’s AIDS Drug Program; Concerned Floridians Invited to Attend Forum to Address Growing Crisis in Florida’s AIDS Drug Assistance Program

Florida—with Nation’s Third Largest HIV/AIDS Case Load—Will Remove 350 Enrolled AIDS Patients from State’s Lifesaving AIDS Drug Program; Since June, Another 2,300 Florida HIV/AIDS Patients Have Been Placed on a Waiting List

WHAT: Wilton Manors Mobilization & Town Hall Meeting to Save ADAP and Florida AIDS Patients

WHEN: WEDNESDAY, November 17th – 6:00 PM

WHERE: Hagen Park Community Center

2020 Wilton Drive, Wilton Manors, FL 33305

The AIDS Healthcare Foundation (AHF) wants the Sunshine State to mobilize now! A town hall event has been immediately planned to address the ADAP crisis, now affecting an excess of 2500 HIV-infected patients in the state of Florida. Please join AHF and its community partners in this effort and have your voices heard on Wednesday, November 17th 2010 at 6:00pm at Hagen Park’s community facility! (2020 Wilton Dr., Wilton Manors, FL 33305)

The town hall is open to the public and hors d’oeuvres and refreshments will be provided. This event will offer answers to your concerns, tools to navigate access to medication and care and a chance to personally urge your representatives to act now. AHF is banding together with local AIDS service organizations and community leaders to advocate for HIV/AIDS patients and their loved ones all over Florida. Federal funding is needed now to save thousands of lives! Constituents of our state, we ask you to contact your local, state and congressional leaders to put an end to this intolerable neglect!

By the beginning of next month, 350 current recipients of ADAP benefits will no longer be able to obtain their medication through this federally funded program. The Florida AIDS Drug Assistance Program, commonly referred to as ADAP, is $16 million short of being able to serve all of its current clients until April 1st, according to the Health Department. Florida also has the largest ADAP patient waiting list in the country (2306 and counting), as well as the highest rate of new HIV infections. Enrollment into ADAP has reached unsustainable levels with presently allocated funds and thus has impelled the Health Department to tighten income eligibility requirements. 2000 more patients may be at risk for needing to be dropped if the Health Department cannot procure emergency dollars to support the program.

Although some money is being funneled Florida’s way, ADAP will still require millions of dollars more to accommodate its patient load. With a bleak job market still lingering, HIV patients who have lost their employment are still relying on this government program to receive the life saving medication they need. Thousands are now teetering on the brink of therapy interruption. This cannot happen.

Awareness must be made. Please mobilize with your community. There will be numerous resources available at this town hall event. The date is quickly approaching, so mark it and come.


Contact Jason King, AHF Pharmacy Specialist & Patient Advocate at (954) 610-3064 or jason.king@aidshealth.org

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First the news from the Florida Department of Health; The number of people on the ADAP waiting list for Broward County increased by 45 people LAST WEEK to 366 people.

Now from Poz magazine, October/November issue, ADAP Update.

“Florida is expected to keep adding about 400 people per month” to the ADAP waiting list.

Waiting lists are the tip of the iceberg. If a state cuts its ADAP and places residents on waiting lists, that means, it has already slashed HIV prevention efforts, tightened ADAP eligibility and reduced the meds the program covers.

Demand is growing because:
-more people are unemployed and losing health insurance
-ADAP funds are shrinking because of state and federal fiscal crises
-the nation’s efforts to test more people have led to more diagnosis
-The meds are working, which means more people are living longer and taking meds

My commentary;

Let’s discuss how much money we’re talking about here. The shortfall is approximately $100,000,000. $100 million. If I won that in the lottery, it would be a big deal and change my life. I could live anywhere I wanted, drive any car I wanted, travel anywhere anytime I wanted, and virtually buy anything I wanted.

But to put things in perspective, that’s about what Simon Cowell makes in a year to host American Idol. Home Depot gave their fired Chairman and CEO Robert Nardelli a $210 million dollar severance package, twice what we’re talking about. The payroll for the Miami Dolphins is $126 million per year and the New York Yankees payroll is $206 million per year.

To understand how the ADAP deficit fits into the national budget picture, the total revenue for the federal government is over 2 trillion dollars, $2,000,000,000,000. We’re talking about $100,000,000. Look at the number of zeros. $100 million is less than a drop in the bucket. This is not discretionary spending. This is a life and death matter for 3,000 Americans. This is a life and death matter for nearly 400 Broward County residents and a life and death matter for many of our friends.

We’ve allocated $48 billion to AIDS treatment overseas and yet cannot take care of our own people. This is inexcusable.

There is no excuse. The AIDS crisis can be stopped NOW if you test people and treat the infected. It really is that simple.

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Sometimes being #1 is NOT what you where you want to be, like being #1 on the ADAP Waiting List. But that’s where we are, by A LOT. And Broward County has 342 patients on the Waiting Listing according to the Department of Health.
National Alliance of State and Territorial AIDS Directors
The ADAP Watch

September 24, 2010

ADAPs With Waiting Lists (3,441 individuals in 9 states*, as of September 23, 2010)
1. Florida: 1,796 individuals
2. Georgia: 553 individuals
3. Louisiana: 439 individuals**
4. Ohio: 232 individuals
5. Kentucky: 227 individuals
6. South Carolina: 148 individuals
7. North Carolina: 36 individuals
8. Montana: 10 individuals
9. Iowa: 0 individuals (program capped on September 15, 2010)

ADAPs With Other Cost-Containment Strategies (Instituted Since April 1, 2009, as of July 22, 2010)
AdvertisementArizona: reduced formulary
Arkansas: reduced formulary, lowered financial eligibility to 200% FPL
Colorado: reduced formulary
Georgia: reduced formulary, implemented medical criteria, continued participation in the Alternative Method Demonstration Project (AMDP)
Illinois: reduced formulary
Iowa: reduced formulary
Kentucky: reduced formulary
Louisiana: discontinued reimbursement of laboratory assays
Missouri: reduced formulary
North Carolina: reduced formulary
North Dakota: capped enrollment, instituted annual expenditure cap, lowered financial eligibility to 300% FPL
Ohio: reduced formulary, lowered financial eligibility to 300% FPL (disenrolled 257 clients)
South Carolina: instituted annual expenditure cap, lowered financial eligibility to 300% FPL
Utah: reduced formulary, lowered financial eligibility to 250% FPL (disenrolled 89 clients)
Washington: instituted client cost sharing, reduced formulary (for uninsured clients only)
Wyoming: reduced formulary

ADAPs Considering New/Additional Cost-Containment Measures (Before March 31, 2011***)
Arizona: establish waiting list
Colorado: establish waiting list
Florida: reduce formulary, lower financial eligibility to 350% FPL
Illinois: reduce formulary, institute monthly expenditure cap, lower financial eligibility to 300% FPL
Idaho: establish waiting list
New Jersey: reduce formulary, lower financial eligibility
Ohio: disenroll approximately 861 clients based on new medical criteria
Oregon: reduce formulary, institute client cost sharing
Puerto Rico: reduce formulary
Rhode Island: lower financial eligibility to 200% FPL
South Carolina: disenroll 200 clients, establish annual expenditure cap
Virginia: establish waiting list
Washington: require all clients to enroll in insurance, lower financial eligibility to 275% FPL
Wyoming: establish waiting list, reduce formulary, institute client cost sharing

* As a result of ADAP Emergency Funding, Hawaii, Idaho, South Dakota, and Utah have eliminated their waiting lists.
** Louisiana has a capped enrollment on their program. This number is a representation of their current unmet need.
*** March 31, 2011 is the end of ADAP FY2010. ADAP fiscal years begin April 1 and end March 31.

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