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Posts Tagged ‘ADAP waiting list’

On Tuesday, October 28 at 7:30 PM at Tom Sheaffer’s house he will be showing the second film in a mini-series of gay films, Bridegroom.
Bridegroom
BRIDEGROOM is a documentary directed by Linda Bloodworth-Thomason that tells the emotional journey of Shane Crone and Tom Bridegroom, two young men in a loving and committed relationship that was cut short when Tom was killed in a tragic accident. The story of what happened after this accidental death – of how people without the legal protections of marriage can find themselves completely shut out and ostracized– is poignant, enraging and opens a window onto the issue of marriage equality like no speech or lecture ever will.

On May 7, 2012, the anniversary of Tom’s death, after a year of documenting his own grief, Shane decided to make a video tribute to his partner entitled “It Could Happen To You.” This film, posted on YouTube, received over 3.4 million views and has been translated into over 20 different languages.

There will be soft drinks. Feel free to bring light snacks to share.

PLEASE DO NOT PARK ON THE NEIGHBORS’ LAWNS. THANK YOU.

Tom Sheaffer 1810 NE 41st Street, Oakland Park 33308

Lsheaffer@aol.com. 954 990 4457

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Florida ADAP

National Policy Office – Washington, D.C.: 202-835-8373

Program and Administrative Office – Tampa, FL: 813-258-5929

 

For Immediate Release: 04.30.12


Media Contacts: Ted Howard, 813.258.5929, thoward@theaidsinstitute.org

 

The AIDS Institute Praises Florida Governor Rick Scott and Florida Legislature for Taking Steps to Support AIDS Drug Assistance Program 

Will Help Alleviate Long Wait List to Receive Medications

Tampa, FL –The AIDS Institute applauds Florida Governor Rick Scott and the Florida legislature for increasing state funding to the Florida AIDS Drug Assistance Program (ADAP) as part of the 2012 state budget recently approved by the Legislature and signed by the Governor.

“This is an extraordinary step forward for the healthcare of Floridians living with HIV who do not have the means to pay for medications to keep them healthy and alive,” commented Michael Ruppal, Executive Director of The AIDS Institute.  “We thank both the Florida legislature and Governor Scott for supporting a program that saves lives, reduces medical costs and saves tax payer dollars.”
ADAP provides life-saving medications to treat low income people with HIV/AIDS who are underinsured or uninsured throughout the country. It is funded by a combination of federal and state funds, and rebates provided by pharmaceutical companies.
The program in Florida currently serves about 12,000 people.   Due to severe budget constraints and increased patient demand caused by people losing their jobs and health insurance during these tough economic times in Florida, the Florida ADAP program has had to institute wait lists for people to receive their medications.  At one point last year over 4,000 Floridians were on a wait list for this life-saving program.  Due in part to increased federal dollars that number has been reduced to 427.
The $2.5 million in recurring state general revenue funds for Florida ADAP should help reduce the current wait list even more and at the same time help meet the continued increase in new patients entering the program every month.
“It’s very satisfying to see our elected officials understand the value of this program. ADAP saves Florida millions more than it contributes because it keeps patients on their medications and off Medicaid.  ADAP patients can remain in Florida’s workforce and stay healthier. They are hospitalized less often, too,” said Jesse Fry, Co-chairman of Florida HIV/AIDS Advocacy Network, a program of The AIDS Institute.
“When a person is not receiving medications they run the risk of becoming sicker and often have to leave work and end up being disabled.  Then they go on Medicaid, which, in the end, costs the state more in treatment costs,” Fry added.
The AIDS Institute is pleased with this increase in program support and will work closely with the Florida Department of Health to ensure that the Florida ADAP program remains flexible to consumer and patient support and a viable safety net for those with the greatest need.

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Tuesday May 3, 2011 there will be a rally in Miami at noon at the

Kovens Conference Center
3000 NE 15th Street
Miami, FL 33181

The honorable Governor of Florida is proposing to lower ADAP funding by lowering the eligibility level of income from 400% to 200%. (400% is approximately $40,000 while 200% is $20,000/year). This will basically throw about 3,000 Floridians off ADAP. There will be 4 meetings held across the state to protest these cuts. Miami is the closest to us.

Buses will be provided on Tuesday by AHF Pharmacy to the Miami rally against ADAP cutbacks. Bring your letters to read at the meeting on how these cutbacks will effect you or your friends. Buses will be leaving from Broward House located on Andrews Ave, south of Oakland Park Blvd ( approximately around 28 Street ). Leaving at at 10:00 am & 10:30 am… Be there by 9:30 am & 10:00 am respectively to get on one of these buses. The meeting in Miami starts at noon !

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House passes ‘Hastings Amendment’ in a voice vote early Friday morning; following meetings with AHF doctor & staff, Alcee Hastings (D, FL 23rd), introduced and shepherded budget amendment reallocating $42 million in government bureaucracy to relieve the struggling AIDS Drug Assistance Programs (ADAP)

Florida, with nation’s third highest AIDS rate, has 3,276 people on an ADAP waiting list as of Feb 17th; AHF commends Rep. Hastings for his leadership funding lifesaving AIDS drug program

By: AIDS Healthcare Foundation
Washington, DC – February 18, 2011
AIDS Healthcare Foundation (AHF) today commended United States Congressman Alcee Hastings (D, FL, 23rd District) for authoring, introducing and successfully shepherding a budget amendment to the current year’s budget that secures crucial additional funding to address a growing crisis in the nation’s AIDS Drug Assistance Programs (ADAP), a network of federal and state funded programs that provide life-saving HIV treatments to low income, uninsured, and underinsured individuals living with HIV/AIDS nationwide. The House of Representatives passed the Hastings Amendment in a voice vote recorded at 12:38 a.m. Friday morning.

“Congressman Hastings has succeeded in getting government funding—$42 million—reallocated to address a growing AIDS funding shortfall that is crippling ADAP and threatening the lives of thousands of Americans,” said Michael Weinstein, President of AIDS Healthcare Foundation. “His swift and decisive action on this issue shows real leadership, and as a result, people with AIDS in Florida and across the nation have the potential to get off waiting lists and on to lifesaving antiretroviral treatment. We thank Representative Hastings for vigorously supporting—and funding—ADAP, and we now call on the Senate to follow suit and make this funding happen.”

As of February 17th, there were 6,452 individuals on ADAP waiting lists in 10 states, including 3,276 people—more than half the nationwide total—in Hastings’ home state of Florida. Since December alone, patient waiting lists for the nation’s hard-hit AIDS Drug Assistance Program have grown 36% for individuals waiting to access antiretroviral treatment through ADAP than there were just two months ago.

Last week, officials and physicians from AIDS Healthcare Foundation’s Southern Bureau, which serves more than 15,000 Floridians living with HIV/AIDS through a variety of programs, including free HIV testing and prevention programs, HIV/AIDS health care centers and AHF pharmacies located throughout the state, a statewide disease management program and its Positive Healthcare Managed Care program, traveled to Washington to lobby for the use of financial offsets from HHS bureaucracy to address the ADAP crisis. Michael Kahane, AHF’s Southern Bureau Chief and Dr. Rebecca Colon, Medical Director of AHF’s NorthPoint clinic in Ft. Lauderdale, Florida met primarily with the Florida House delegation, clearly laying out the impact ADAP funding shortages are having on people with HIV/AIDS in Florida, as well as those vulnerable to infection.

During the lobbying visits, AHF’s delegation met with Rep. Alcee Hastings’ office. Congressman Hastings subsequently offered an amendment to the House budget that moves $42 million from the bureaucracies of Health Resources and Services Administration (HRSA), the Centers for Disease Control (CDC), and the National Institutes of Health (NIH), and redirects it through Health and Human Services (HHS) specifically to ADAP, for use from now until the end of September, 2011. This reallocation of existing government funds results in more money for AIDS and no increase in overall federal spending.

“What’s truly remarkable about the passage of the Hasting Amendment is that at time when the Republican controlled House is cutting over $100 billion from the budget, they unanimously agreed to fund AIDS care and treatment,” added AHF’s Weinstein.

Still ahead: the Senate must now agree to the budget amendment in order for it to pass and take effect.

In an official statement posted on his blog (via his website) earlier today, Representative Hastings wrote:

“Last night, I offered an amendment to H.R. 1, the Full-Year Continuing Appropriations Act, which would help people living with HIV/AIDS who cannot afford their treatment by reallocating additional funding to our nation’s AIDS Drug Assistance Program (ADAP). I am pleased to report that my amendment was agreed to by a voice vote and thus included in H.R. 1.

It is unconscionable that, in 2011, we often have the resources to save lives but wait until a crisis before taking action. Just this month, thousands of Floridians living with HIV/AIDS were on the verge of losing access to their life-saving drugs as Florida’s ADAP ran out of money.

My amendment reallocates $14 million from each of the Fiscal Year (FY) 2011 administrative budgets of the Centers for Disease Control and Prevention (CDC), Health Resources and Services Administration (HRSA), and National Institutes of Health (NIH) in order to provide $42 million to ADAP. According to the Congressional Budget Office, if enacted, my amendment would save $1 million in new FY 2011 expenditures. Furthermore, it would have no net budget authority effect for FY 2011.

We can and must do better. I urge my colleagues to support increased funding for our nation’s ADAP by voting in favor of my amendment. By reallocating desperately-needed funds to ADAP, we are helping states like Florida ensure that low-income individuals living with HIV/AIDS have access to the medications and services they need to stay alive while stemming the tide of new infections and saving our nation money in the long-term.”

During the debate on the amendment last evening, Rep. Debbie Wasserman Schultz (D, FL 20th District) also spoke on the issue. In her remarks, Wasserman Shultz said:

“This essential national program is undeniably in the midst of a devastating funding crisis. The combination of an economic recession, state budget cuts and increased testing and diagnosis of HIV have a created the perfect storm against ADAP’s fiscal situation. More patients are requiring ADAP treatment as the program has been emptied out.

This has resulted in drastic cuts to services provided and thousands in 10 different states have ended up on waiting lists to receive these necessary lifesaving drugs. In my own state of Florida, with the largest of all such waiting lists, 3,276 individuals languish without access to affordable lifesaving treatment. Our state has lowered financial eligibility down to 300% of the Federal Poverty Level while at the same time reducing the formulary for the patients who still qualify.

In this budgetary climate, we must make smart and sensible decisions where we can afford to make an administrative haircut if the tradeoff is saving lives. It is our moral imperative to do so.”

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Poz Magazine looks at the ADAP crisis in Florida.

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by Rebecca Jacobson
Funding Shortage Threatens AIDS Drug Program

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Good afternoon,

Below is a reporter that wants to speak with someone (confidential if requested) that is directly impacted by the ADAP crisis in Florida or another state. If you are someone wouldn’t mind speaking with her you can use the contact information below. She is working on a print article for Monday the 7th and can be contacted over the weekend on her cell.

Thank you,

MR

Rebecca Jacobson

The PBS NewsHour

8269 E. 23rd Ave

Denver, CO 80238

Phone: 303-542-5533

Cell – 402-578-8309

Fax: 303-388-9600

Email: rjacobson@newshour.org

Website: http://www.pbs.org/newshour
__________________________________________________________________________
Michael Ruppal
Executive Director
The AIDS Institute
Program Office
17 Davis Boulevard, Suite 403 Tampa, FL 33606
813-258-5929 / 813-258-5939 Fax
Policy Office
2000 S Street, NW, 3rd Floor Washington, DC 20009
202-835-8373 / 202-835-8368 Fax
MRuppal@TheAIDSInstitute.org

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